Posted in Random nothings

Living with Autism Level 1

Autism Level 1 also known as Aspergers or High Functioning Autism, is a complex syndrome. You aren’t ‘autistic’ enough for people to realize you have it, but you aren’t normal enough for people to not notice you are ‘weird’.

And that is where we are right now. Abby’s results came in and she has Aspergers (yes we have know the whole time, but an official diagnosis was needed). So the official diagnosis really does not change anything, we are treating her the same, loving her the same and struggling with the same things.

Just an insight into her ‘world’ – she is 2 years and 10 months old – but her mental capability is that of a child 19 months older than her. So she is extreme intelligent and has the vocabulary of a child older than 4. But emotionally, she is only a year and a half. And this extreme gap causes her to have the knowledge of things around her, but not have the ability to react to it. Think – Sheldon Cooper of Big Bang Theory. So yeah us, we are raising a pretty, girly Sheldon that is in love with dinosaurs and trains!

We are carrying on with therapy and I will blog more on what I found is working for us and what is not at a later stage.

I am really feeling for her at the moment. The last 2 weeks I have been very busy and there has been a lot of customers coming in to pick up products. This has totally thrown her system out. By Saturday evening she was a total mess as I have been at a market the whole day and she was left with hubby. Sunday she was even more clingy and slept with me the whole night, holding on to me. We wanted to go out for some ice cream but I realized that taking her out in public the way she was, would be a disaster. So I sent hubby to do the ‘chores’ part of our trip and stayed with her. I wanted to brush her (I will explain brushing in a different post) but her brush just felt too hard for me. I was desperate to give her input, so I remembered a back massager  that my sister in law gave me as a gift a few years ago. I found batteries for it and gave it to her. The amount of instant relief it gave was amazing. She was rubbing it on her legs, arms, tummy and even put it in her mouth. She loved the input she got. By the time hubby got back, she was calm and we could go out and have ice cream. She was VERY busy while out, but on average, it was a good outing. So yeah for massagers!

Today she was very needy. I had to stop my work often and go to bed with her. She just wants to be in bed hugging me. And it so difficult with a cheeky 4 year old in the mix that demands attention. But hey, tomorrow is a better day. Also – as an Aspie parent, you are always tired. Like always. So send coffee!! And chocolates!

We really want to thank Lorryn at The Mouse House. She has been amazing with Abby and we could not have asked for a better person to do the evaluation.

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Author:

Owner of Geek World South Africa. Owner of Tipanga Photography.

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