Today I had to choose – a neat house (well sort of neat) or my child. My child won and I now have, in the middle of my living area, where there use to be a dining room, a therapy room. With trampoline, the works.
I am sure I will get used to how it looks with time and I still have to move things around and finish the project, but ‘by society standards’ it looks horrid. My house is a mess. BUT I can give Abby the 3 x 15 min sessions a day she needs for therapy. Sky is also enjoying the space as we realized that she also has some sensory issues – nothing as severe as Abby’s, but she needs some therapy as well. Her low muscle tone is something we have been aware of for a while and her core strength is something that needs a lot of attention. So here I sit in the middle of the chaos. We had to choose to live by society’s standard or to give our children the best we can. It was actually an easy enough decision then. We never really cared for what people think.
We have been back to the doctor and he suggested we visit a pediatric neurologist in Cape Town with Abby. We are 99% sure she has Aspergers (high functioning Autism) but she is too young to diagnose her officially and it will have to be done by a pediatric neurologist. There are non in Port Elizabeth. Sigh.
It has been a long 13 months but we know that everything will be okay. She has such a wicked sense of humor and she loves us and her sister so much. She just needs help to cope with all the sensory input the world throws at her. Things just gets too much for her on a daily basis. But we do our therapy and we do our play and she is doing so well. We are so proud of our little miracle.
**** Just a note – we are okay with the diagnoses. We deal with it. This is not a ‘oh shame, feel sorry for us’ post. Also, although we really appreciate it, encouraging words like: Oh she will grow out of it, really makes it worse not better. We’ve done the research, we know what we are in for, and it is okay with our hearts.
We are working towards having all of these items in the room. We are getting there…